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President Obama signed a bill today that will provide incentives to drug companies to research and develop drugs for rare diseases. The Creating Hope Act grants pharmaceutical companies that create drugs for diseases like childhood cancers a voucher giving speedier review of any other drug they submit for approval. The Oval Office signature was a hard-fought victory for children like Mollie Ward

WASHINGTON - When all else failed, the promise of corporate profits for pediatric cancer drugs did what cajoling to save children could not. Legislation by Texas Rep.

This is the saddest story you will ever read about how a bill becomes law. It should also make you feel better about our dysfunctional political system. The story begins on a Sunday in February 2007, when a doctor suggested that Jacob Froman, then 8, had brain cancer. An MRI on Monday confirmed the grim diagnosis: metastatic medulloblastoma.

This was supposed to be the year for Jacob Froman's bar mitzvah, except that a rare and fatal brain cancer reached out for him first. Just 10, Jacob died in 2009, two years after a diagnosis of medulloblastoma, a rare brain cancer with no drug designed specifically to treat it. During the arduous months of ultimately unsuccessful treatments, his mother, Nancy Goodman, discovered that few pharmac

Last week, Representative Michael McCaul (R-TX), along with Reps. G.K. Butterfield (D-NC), Sue Myrick (R-NC), and Chris Van Hollen (D-MD), introduced H.R. 3059, the Creating Hope Act of 2011. The bill is a companion bill to S. 606, which was introduced in the Senate earlier this year by Senator Robert Casey (D-PA), along with co-sponsors Sens.