Press Releases

Sep 7, 2015

6th Annual Childhood Cancer Summit “Progress and Opportunities in the Fight against Pediatric Cancer” You’re Invited!

You are invited to the 6th Annual Childhood Cancer Summit: "Progress and Opportunities in the Fight Against Pediatric Cancer". This year we are pleased to welcome Dr. Lee Helman, the Acting Director of National Cancer Institute’s Center for Cancer Research, as our keynote speaker. The Summit is open to the public.

Jul 29, 2015

McCaul, Van Hollen, Speier, Reed, and Capito Introduce Bipartisan Childhood Cancer STAR Act

The Childhood Cancer STAR Act would improve efforts to identify and track childhood cancer incidences, improve the quality of life for childhood cancer survivors, ensure publicly accessible expanded access policies that provide hope for patients who have run out of options, and identify opportunities to expand the research of therapeutics necessary to treat the 15,780 children diagnosed with cancer in the U.S. every year.

Jul 10, 2015

House Votes to Increase Funding for NIH, Reauthorize Creating Hope Act

The House passed the 21st Century Cures Act to increase funding for the National Institutes of Health (NIH) and reauthorize the Creating Hope Act which will incentivize the development of new treatments for children with rare pediatric diseases, such as cancer.

Mar 13, 2015

Creating Hope Act Sponsors React to FDA Approval of Pediatric Cancer Treatment

The sponsors of the Creating Hope Act applaud the approval of the first drug ever to treat high-risk neuroblastoma and call for the law to be made permanent.

Sep 30, 2014

Caucus Applauds NCI for Naming Pediatric Oncologist to Council of Research Advocates

The Childhood Cancer Caucus applauds Dr. Harold Varmus, the Director of the National Cancer Institute (NCI), for announcing the appointment of Dr. Greg Aune, a pediatric hematologist-oncologist from The University of Texas Health Science Center at San Antonio, to NCI's Council of Research Advocates.

Sep 30, 2014

FDA Awards $1.6 Million Grant to Stimulate Treatment for Pediatric Low Grade Gliomas

On September 30th, the U.S. Food and Drug Administration announced it has awarded 15 grants totaling more than $19 million to boost the development of medical device, drug, and biological products for patients with rare diseases, with at least a quarter of the funding going to studies focused solely on pediatrics. $1.6 million will go toward a Phase 2 Study of Poly-ICLC for the Treatment of Pediatric Low Grade Gliomas, the most common type of brain tumor in children.

Sep 19, 2014

NCI Announces a Pediatric MATCH Trial for Childhood Cancer

On September 19, Dr. Francis Collins, the Director of the National Institutes of Health (NIH), announced a new pediatric trial for children with cancer. Sponsored by the National Cancer Institute (NCI), the Molecular Analysis for Therapy Choice Program (MATCH) trial will enroll children with advanced cancers that have progressed on standard therapy.

Sep 4, 2014

You're Invited to the 5th Annual Childhood Cancer Summit!

On Friday, September 19, the Childhood Cancer Caucus will host its 5th Annual Childhood Cancer Summit: "Pediatric Cancer: Major Advances, Major Challenges".

Nov 12, 2013

Concerns about Daunorubicin Shortage

Representatives McCaul and Van Hollen send letters to the FDA and Teva Pharmacueticals to seek more information about the ongoing shortage of daunorubicin, an essential therapy in the treatment of leukemia in children.

Sep 19, 2013

Progress in Developing First Pediatric Cancer Treatments in Decades Highlights 4th Annual Childhood Cancer Summit

Progress into research and development of the first new pediatric cancer drugs in nearly 30 years was announced at the 4th Annual Congressional Childhood Cancer Summit on Capitol Hill on September 19, 2013.