Re-Introduction of the STAR Act in the 115th Congress
The 46 Mommas represent mothers who make the cancer journey with their child. Their annual teams are comprised of women from across the U.S., with different backgrounds, beliefs and lifestyles; there is one thing they have in common-- childhood cancer. The 46 Mommas are a fundraising team of the St. Baldrick's Foundation (see below).
Alliance for Childhood Cancer
The Alliance for Childhood Cancer represents more than twenty national patient advocacy groups and professional medical and scientific organizations. Patient advocates, many of whom are either survivors themselves or are parents of children with cancer, and joined by oncology professionals and others representing the multidisciplinary spectrum of cancer care in a unique alliance that brings concerned parties together to advance the interests of children with cancer.
American Childhood Cancer Organization (ACCO)
The American Childhood Cancer Organization is the largest publisher and distributor of free childhood cancer books in the country. ACCO's books and materials are targeted to parents, young patients, siblings, educators, and caregivers. ACCO works constantly to develop new tools and resources for the population it serves.
Bear Necessities Pediatric Cancer Foundation
Bear Necessities Pediatric Cancer Foundation is a national 501(c)3 organization founded in 1992 that has been actively contributing to children stricken with cancer. With a mission is to eliminate pediatric cancer and to provide hope and support to those who are touched by it, the focus is on pediatric cancer research, providing customized experience that brightens the life of a child going through cancer and immediate family support for financial burden and essential needs.
Cancer Prevention Research Institute of Texas (CPRIT)
Texas voters overwhelmingly approved a constitutional amendment in 2007 establishing the Cancer Prevention and Research Institute of Texas (CPRIT) and authorizing the state to issue $3 billion in bonds to fund groundbreaking cancer research and prevention programs and services in Texas. CPRIT’s goal is to expedite innovation and commercialization in the area of cancer research and to enhance access to evidence-based prevention programs and services throughout the state.
Carson Leslie Foundation
The Carson Leslie Foundation is dedicated to raising funds for research leading to a cure from pediatric cancer and enriching the lives of teens in the battle.
Children's Brain Tumor Foundation
Children’s Brain Tumor Foundation, a non-profit organization, was founded in 1988 by dedicated parents, physicians and friends. Its mission is to improve the treatment, quality of life and the long term outlook for children with brain and spinal cord tumors through research, support, education, and advocacy to families and survivors.
Children's Cause for Cancer Advocacy (CCCA)
The Children’s Cause for Cancer Advocacy (CCCA) is the leading national advocacy organization working to achieve access to less toxic and more effective pediatric cancer therapies; to expand resources for research and specialized care; and to address the unique needs and challenges of childhood cancer survivors and their families. CCCA leads efforts to ensure that these needs and perspectives of children with cancer are integrated into the highest deliberations on health care and cancer policy at the Federal level.
CURE Childhood Cancer
Founded in 1975, Atlanta, Georgia-based CURE Childhood Cancer has raised millions of dollars for research and ongoing education of pediatric cancer and is focused on supporting childhood cancer experts, locally and nationally, who work daily to discover a cure for pediatric cancer. CURE Childhood Cancer currently funds two pediatric oncology Fellows at the Emory University School of Medicine. CURE Childhood Cancer also offers programs that address the critical/urgent needs of patients and their families.
CureSearch for Children’s Cancer is a national non-profit foundation whose mission is to fund and support children’s cancer research and provide information and resources to all those affected by children’s cancer. CureSearch raises funds for promising research conducted at more than 175 hospitals across the nation. These hospitals participate in National Cancer Institute sponsored clinical trials conducted by the Children’s Oncology Group.
CureSearch raises funds through individuals, special events, corporations, and private foundations. Charitable giving is especially important now, as federal funding for children’s cancer research has been flat for the last decade, and was reduced by five percent in 2011.
CureSearch also manages the operations center of the Children’s Oncology Group, the largest cooperative research entity in the world. With more than 6,500 physicians, nurses and other researchers, COG member hospitals treat 90% of children in the United States with cancer.
DC Candle Lighters
DC Candlelighters Childhood Cancer Foundation is a 501(c)3 non-profit support group for families with children of cancer in the Washington, DC, metropolitan area (including Northern Virginia and Maryland ). It is affiliated with the Candlelighters Childhood Cancer Foundation, an international network of parent support groups founded in 1970 by parents of children with cancer.
Endure to Cure Pediatric Cancer Foundation
Endure to Cure is a national 501(c)(3) non-profit that helps bring hope to children with cancer and their families through our Small Miracles & Travel for Treatment Assistance programs. Our Small Miracles program brings uplifting gifts and experiences to children in cancer treatment. Our Travel for Treatment Assistance program helps families in financial need by funding the uninsurable and immediate travel expenses associated with their child's cancer treatment.
The Evan’s Victory Against Neuroblastoma Foundation is dedicated to supporting research that will foster new therapeutic options for kids currently in treatment. Neuroblastoma will not wait so neither can we. In addition, the Foundation will support patient-wellness programs designed to brighten the days of children enduring long and difficult stays in the hospital and at home.
Hope on Wheels
The Hope on Wheels Tour is the united effort of Hyundai dealers across the country to raise awareness about childhood cancer and celebrate the lives of the courageous children battling the disease.
Kakkis EveryLife Foundation
The Kakkis EveryLife Foundation was formed in order to expand access to treatment for patients with very rare diseases by improving the regulatory process through better understanding of new surrogate measures of disease, new clinical study designs, and new organizational focus at the FDA.
Kids V Cancer
Kids v Cancer promotes pediatric cancer research by identifying structural impediments at key junctures in the decisionmaking process -- new drugs, tissue donation, access to funding -- and developing strategies to address them.
Leukemia & Lymphoma Society
The mission of The Leukemia & Lymphoma Society (LLS) is: Cure leukemia, lymphoma, Hodgkin's disease and myeloma, and improve the quality of life of patients and their families. LLS is the world's largest voluntary health agency dedicated to blood cancer. LLS funds lifesaving blood cancer research around the world and provides free information and support services. LLS's Key Priorities will ensure that: The Leukemia & Lymphoma Society helps blood cancer patients live better, longer lives.
Madisons Foundation is dedicated to improving the quality and quantity of information available to parents of children with rare, life-threatening diseases, and to facilitating effective communication among parents, physicians and medical experts.
Mattie Miracle Foundation
Named for Matthew Joseph Brown, the Mattie Miracle Cancer Foundation is dedicated to increasing Osteosarcoma and other pediatric cancer awareness, education, advocacy, research and social support services to children, their families, and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality medical and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives.
Max Cure Foundation
The Max Cure Foundation is a 501(c)(3) non-profit corporation to benefit pediatric cancer causes. While The Max Cure Fund at Memorial Sloan Kettering will be the primary beneficiary of The Max Cure Foundation, it also supports many other worthy causes focused on pediatric cancer treatments and improving the lifestyle of children afflicted by cancer.
Max's Ring of Fire
Max's Ring of Fire, (MROF), is a pediatric cancer fundraising and advocacy organization that supports innovative childhood cancer research and clinical trials. The organization is dedicated to funding translational research that results in therapeutically-relevant Phase I and II clinical trials. The charity was founded in 2008 in honor of Max Mikulak, who was diagnosed with the neuroblastoma at the age of three. Max battled hard against the disease for four years until the age of seven.
National Cancer Institute (NCI)
The National Cancer Institute (NCI) is part of the National Institutes of Health (NIH), which is one of 11 agencies that compose the Department of Health and Human Services (HHS). The NCI, established under the National Cancer Institute Act of 1937, is the Federal Government's principal agency for cancer research and training.
The National Cancer Institute coordinates the National Cancer Program, which conducts and supports research, training, health information dissemination, and other programs with respect to the cause, diagnosis, prevention, and treatment of cancer, rehabilitation from cancer, and the continuing care of cancer patients and the families of cancer patients.
National Organization for Rare Disorders (NORD)
The National Organization for Rare Disorders (NORD), a 501(c)(3) organization, is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.
Pediatric Low Grad Astrocytomas (PGLA) Foundation
The PLGA Foundation is an organization committed to children with slow-growing brain tumors. They provide support to patients and families along with raising money to support research on these forms of brain tumors.
People Against Childhood Cancer (PAC2)
PAC2's mission is to raise awareness about childhood cancer and to unite the childhood cancer world to speak as one voice united against childhood cancer.
Rally Foundation, a 501(c)(3) non-profit organization, empowers volunteers across the country to raise awareness and funds for childhood cancer research to find better treatments with fewer long-term side effects and, ultimately, cures.
Rare Disease Legislative Advocates (RDLA)
RDLA is open to all members of the rare disease community with an interest in sharing ideas and advocating for the introduction or enactment of legislation. RDLA was created as a clearinghouse of ideas designed to bring together rare disease organizations active on the Hill to share information around common causes. It does not promote any specific policy, but provides support to all rare disease organizations seeking introduction/enactment of legislation.
St. Baldrick's Foundation
The St. Baldrick's Foundation is a volunteer-driven charity committed to funding the most promising research to find cures for childhood cancers and give survivors long and healthy lives. The Foundation is the largest private funder of childhood cancer research in the nation (second only to the U.S. government).
Based on research, as well as input and encouragement from parents, siblings and professionals in the oncology world, SuperSibs! was created in October 2002 to support and recognizes brothers and sisters of children with cancer.
Tennessee Cancer Coalition/Childhood Committee
The Centers for Disease Control (CDC) supports Cancer Control Coalitions in each state to allow organizations to collaborate to reduce the burden of cancer. To achieve the goal and objectives in the childhood chapter of the State of Tennessee Comprehensive Cancer Control Plan 2009-2012, the Tennessee Cancer Coalition/Childhood Committee has five regional action teams comprised of over 30 childhood cancer organizations. Childhood action teams set regional priorities and work together on statewide initiatives. We unite to: a) raise awareness, b) advocate, and c) provide resources for families.